Company’s calling - an RN speaks about her fibromyalgia
This week, we welcome Bonnie Hensley, a 50-year-old registered nurse in the Seattle area joins us. She tells me that she works 56 hours in a 2-week period (3 days one week, 4 the next) in a community hospital operating room.
She’s been an OR nurse (”all I’ve ever done as a nurse,” she says) since 1989.
Can you tell me about when you first started experiencing the pain and what kind of pain it was?
It was about two years ago or so, don’t remember exactly when. I was tired and achy all the time, no matter what I did or didn’t do. Felt like I’d been beat up, every part of my body ached and it was frequently a deep ache.
Did you seek help right away? If so, what type of help and, if not, why not?
Put up with it for a few months, thinking it would go away (yeah, right). Finally saw my primary care doc, mostly because of feeling worn out all the time. She did a few labs and a bone scan, and referred me to a rheumatologist to see if I had Rheumatoid Arthritis or something else.
What did the doctors tell you when you did seek help?
He did a thorough exam and several labs. Concluded that I did have fibromyalgia, and a type of lupus (not RLE). He told me that fibro was real, that they didn’t really know what caused it, there was no cure, but symptoms could be managed.
What have you tried to help you with your pain?
Changing my anti-depressant helped some, as did a prescription sleeping pill (it’s really bad when I don’t sleep well). I take a non-opoid pain med when the aching gets to be too much (and when I’m at work–it doesn’t mess with my brain but helps with the pain), and a narcotic at home, sometimes supplemented with a muscle relaxant. Sitting in the hot tub feels pretty good while I’m in there; whether it’s the warmth or the relaxation, I don’t know. I’ve also tried to ‘deal with it’ and ignore it.
Can you tell me a bit about what worked and what didn’t?
“Dealing with it” and ignoring it does NOT help! Fibro will NOT go away. It took me about a year to figure out that trying to fight it wasn’t working, and that it isn’t a failure to take pain meds if it makes life tolerable. The sleeping pill (Lunesta) helps, but doesn’t always help me get a good night’s rest (however, SOME sleep is better than none!). Tramadol enables me to continue to work when the pain starts to get bad. I’ll take a Vicodan when I’m at home, and when it’s really really bad I take two Vicodan and a muscle relaxant (tizanidine) and then I’m essentially unconscious for about 3 hours (but there’s no pain!).
How does having this pain make affect you in terms of how you live your life?
I don’t do as much as I used to, and I don’t have as much energy. I have to pace myself when doing things. Sometimes I have to ask for help at work or request a less physical assignment. I’ve also had to start thinking about other options in my career for the future, because I don’t know how long I’ll be able to continue doing a job I love because of the physical demands. I’m extremely lucky in that I have a very understanding husband who looks out for me and does a lot more around the house than I do.
If you were to look back over what you have tried/haven’t tried, would you change anything? If so, what would you change?
I wouldn’t try to fight it. Accepting this thing was probably the hardest part.
What would you say to someone in a similar situation who is just starting to try to find treatment and relief?
Don’t give up; fibro is REAL and you shouldn’t have to suffer because others don’t know it’s real. Yes, it does change your life, but it’s not the end of your life. Don’t try to over-do on the days you feel good, because you’ll only suffer more the next few days. You aren’t a ‘failure’ if you have to take a pain pill. Don’t be afraid to ask for help. Find a support group, either one you can personally attend or an on-line group where they all understand what you’re going thru and can give you some suggestions for different ways to do things, ideas to make every-day life better, and a place to SCREAM at people if you feel like it.
Thank you Bonnie, for adding your voice to Company’s calling. As you say, fibro is real but there are many who don’t understand it. Please come back and visit to let us know how you’re doing.
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Image: iStock.com
Tags: a type of lupus, Autoimmune disorders (fibro, CFS, etc), body ache, fibro, fibro is real, lunesta, Rheumatoid arthritis, tizanidine, tramadol, vicodan
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POSTED IN: Autoimmune disorders (fibro, CFS, etc), Chronic Pain, Company's Calling, Pain Management
2 opinions for Company’s calling - an RN speaks about her fibromyalgia
Kathy
Apr 17, 2008 at 5:01 pm
I too have fibromyalgia and my treatment regime consists of anything non-pharmaceutical at the moment. I’ve had it for 12 years. After reading this lady’s story I have to wonder at her quality of life. It sounds like she spends a great deal of her time heavily medicated - on anti-d’s, sleeping pills, tramadol and a heavy duty pain med Vicodin that from what I understand has the potential for addiction. I’d venture to say these types of meds aren’t for everyone. If I took all that, I’d be a walking zombie.
Lee
Jul 7, 2008 at 2:09 pm
I think Bonnie is doing all that she knows to do to keep active. I spent 20 years doing the same thing until I finally lucked onto a wise dr. that realized the bacterial connection with CFS/Lyme/RA and even Sarcoidosis! Yes I have been diagnosed with all of the above. Chronic pain and fatigue was my constant. I too found relief with opioid meds and sleeping meds. Now after three years of many different antibitoics to weaken the bacterias I can finally live without the constant pain and fatigue. Sure I have bad days and realize I have another two years of abx therapy to be completely bacteria (L-form) free. Thanks to bad medicine and ignorance the Lyme proliferated into L-form.
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