Girl with painful skin disease can now go in water
Dystrophic epidermolysis bullosa (EB) is a rare genetic disease that children get if both parents are carriers. It causes the skin and internal organs to blister and peel, causing severe pain. Life as a child with EB is very difficult because their skin must be protected by layers of bandages that must be changed regularly.
Because of the fragility of the skin, children with EB can’t take baths or go swimming as the water would cause infections in the blisters and where ever the skin is broken.
Now, in Scotland, a 10-year-old girl can do those two things thanks to a local company that made a special wetsuit just for her. These wetsuits are designed for workers who must go into hazardous situations but the company made on for Hannah and she can wear it to go into the water. What a treat that must be!
Here is the article if you want to read more about Hannah: Water suits ‘butterfly’ girl at last.
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POSTED IN: Children, Chronic Pain, Dermatologic
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