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Help My Hurt

February 12th, 2008

Message board at Lupus Foundation of America

Press release: Lupus Foundation of America Launches Website Message Boards to Connect People With Lupus

    WASHINGTON, Feb. 8 /PRNewswire-USNewswire/ — The Lupus Foundation of
America (LFA) has added message boards to the Community section of its
Website (lupus.org) as a service to people with lupus and their families.
The boards provide an opportunity for individuals to reach out and seek
answers to questions about living and coping with lupus, as well as support
one another in an understanding and caring environment. To access the
message boards go online to http://www.lupus.org/messageboards.

    People with lupus often suffer from severe and disabling joint pain,
overwhelming fatigue, and organ damage, which can be disabling and
isolating. The LFA message boards will be a valuable resource for
individuals who are not able to attend a support group meeting or education
program, particularly those who live in rural areas or where no local
resource is available. In addition, message board users can anonymously
seek help without fear of revealing sensitive medical information to
friends or employers.

    Initial discussion topics include Recently Diagnosed with Lupus, Lupus
Treatments, Men with Lupus, Teens with Lupus, and Coping with Lupus. There
also is a category for discussing topics featured on LFA Webchats.
Additional topics will be added based on feedback from message board
participants.

    Individuals visiting the LFA message boards can view what others have
posted, post their own questions, or share comments about topics of
interest. The message boards will serve to create an online community where
people living with lupus, their relatives and friends, caregivers, and
information seekers can meet, bond together, share ideas, and build hope.

    Lupus is a chronic autoimmune disease which can be destructive to any
major organ or tissue in the body. The disease can be very unpredictable
and is potentially fatal, yet no satisfactory treatment or a cure exists.
Approximately 1.5 million Americans and at least five million people
worldwide have a form of lupus. Lupus strikes mostly females ages 15-44,
although females and males of all ages can develop lupus.

    The Lupus Foundation of America is the nation’s leading nonprofit
voluntary health organization dedicated to finding the cause of and cure
for lupus and providing support, services, and hope to all people affected
by lupus. The LFA and its nationwide network of nearly 300 chapters and
support groups conduct programs of research, education, and advocacy.

SOURCE Lupus Foundation of America

By Marijke Durning, RN -- 0 comments

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